Just wanted to update everyone on our last week in Orlando. Amy Sue is currently off the ventilator and breathing on her own with a trach collar. She is having neurological "brain storms" and has periods of increased heart rate, increased breathing, and rigid muscles. She has been slowly getting weaned off methadone and valium. She appears to be having some withdrawal symptoms and with the brain storms it is hard to determine which one is affecting her. She looks much better with the road rash wounds healing up nicely and not having a ventilator in her mouth. She is getting fed with a G-tube with Pedisure and so her weight is remaining stable so far. She is scheduled for a CT scan of her head on Sunday. Amy is still in pediatric intensive care. She has a few more surgeries scheduled for sometime in the next month.
The kids and I are back in Edgewater for the weekend. Lauren and Noah are spending most of the weekend with their friends and I am just taking a much needed break! We are so very thankful to each and everyone one of you for your prayers and kindness! God Bless you all! Sue